Rédaction Africa Links 24 with Helene-Mari van der Westhuizen
Published on 2024-03-27 13:37:22
Tuberculosis (TB) research in the Eastern Cape region of South Africa revealed an intriguing term used to describe the illness – “isifo sephepha,” meaning the “disease of paper” in isiXhosa. Despite the knowledge that TB spreads through the air and presents symptoms such as coughing, night sweats, and weight loss, the disease continues to proliferate in South Africa, where it is the leading cause of death. Understanding the words used to describe TB offers insight into how communities perceive the disease, which can aid in shaping effective public health campaigns.
The term TB, coined by Robert Koch in 1882, has evolved over time but remains misunderstood. In the 13th century, TB of the lymph nodes was referred to as “the King’s-Evill,” as monarchs believed they could cure it with a touch. The history of TB is rich with colorful descriptions that reflect societal beliefs and understanding of the disease.
In the rural Eastern Cape, the term isifo sephepha sparked curiosity among health workers and community members. Various interpretations emerged, ranging from associations with coughing sounds to living conditions. Some linked the term to environmental factors like air quality and smoking, while others referenced traditional medicine practices involving a tree called iphepha.
The community’s interpretations of the term highlighted the metaphorical and symbolic connections people make to TB, reflecting cultural beliefs and social perceptions. The concept of illness as metaphor, as discussed by Susan Sontag, illustrates how diseases like TB can carry moral connotations and stigma within communities.
Stigma surrounding TB often leads to discriminatory practices and social isolation, despite scientific evidence that TB does not spread through touch or contact with objects. Proper treatment reduces infectiousness quickly, emphasizing the importance of support and understanding for individuals diagnosed with TB.
Efforts to combat TB in South Africa require a holistic approach that addresses social stigmas and misconceptions surrounding the disease. By listening to the community’s perceptions, public health campaigns can be tailored to resonate with local beliefs and practices. Education about TB transmission and treatment is essential to dispel myths and promote support for those affected by the disease.
TB continues to pose a significant public health challenge in South Africa, emphasizing the need for collaborative efforts to raise awareness, reduce stigma, and improve access to healthcare services. By acknowledging the cultural nuances and beliefs associated with TB, we can work towards creating a more informed and supportive environment for individuals living with the disease.
Read the original article on Daily Maverick
